Tired Boy

In response to:So, when's it going to get better?

2009-11-03T01:50:49+01:00

Thanks for posting about this, I would love to read more about this topic.

Pups for Sale

In response to:Where's that light at the end of the tunnel?

2009-09-29T17:12:35+02:00

ohhhhhhhhhh what a week ihope u did pass it well :)
u had a really busy week
Hope u really feel better
Anyway i hope u visit my blog and reply to me son :)
All the best
Carole

In response to:Ugh

2008-04-23T19:43:27+02:00

Hi Fran,

I agree re medication, and only took any after several years trying other solutions without success. Meditation is something I have tried (and have been meaning to write about here), but of a different type to the one you mention (deeper than a Zen monk in under half an hour? Sounds interesting...) and have found it immensely helpful in many ways, including fatigue and sleep. However, since moving, that's one thing I've not managed to get back into regularly. Now I am feeling pretty well, I'm determined that this will change.

Have noticed that you haven't posted for ages and was wondering how you are. Hope it's just work (good to hear that you are able to do this) and daughter that are keeping you from the blog, and not poor health.

cheers
tiredboy

In response to:Ugh

2008-04-22T15:16:45+02:00

Hi TiredBoy, sorry to hear that you haven't been sleeping well. I've had a bad few nights myself and am struggling to cope with the demands of work and a 3 and 1/2 year old! I don't think that medication is always the answer though, in my experience, having had M.E. for 12 years, it is often lifestyle changes that make the difference.

Have you tried meditation? I use the Holosync programme which enables you to meditate deeper than a Zen monk and I find that listening to it for half an hour or an hour before bed makes me sleepy.

Here's to a good night's sleep all round

Take care :)

In response to:The creative spark

2008-03-07T19:06:40+01:00

I've been looking into that book for a while, and I think I will get it. Since I developed ME, almost a decade ago now, I have found it easier to be somewhat creative, although perhaps my worst trait is that I get an idea for a story/book, I start it, and then almost immediately I run out of ideas. It's frustrating, but one day I will have a book published! It's even been a long time since I publically read poetry, back then I used to understand all of the iambics, but now I am sadly lacking.

Best of luck with the poetry. If you ever get the chance, a few of Fry's other books are also very good. :)

In response to:What a feeling!

2007-09-13T18:34:57+02:00

Hi Tiredboy, glad you went for a swim. It does help being suspended in the water as you do feel relaxed. I'm sorry to hear that your session didn't go too well yesterday but hope that you are moving in the right general direction towards better health. Best wishes :)

In response to:The value of real rest

2007-08-30T10:18:24+02:00

Hi tb

I'm just about to post something about ME and sleep on my blog so watch this space!

It sounds as though you are understanding your condition really well, which I believe is the key to recovering to a sufficient level to enable you to do more and cutting the risk or relapsing. It is only through truly knowing where your limits lie that you can cope with ME.

Best wishes

:)

In response to:That about wraps it up

2007-08-09T16:22:35+02:00

Fantastic! I hope things keep on improving for you from here on in :)

In response to:Back again

2007-08-01T10:26:13+02:00

Hello Tired Boy, glad to see that you are back in the land of Blog. Yes it is so difficult to maintain that fine balance between doing what you want and what you feel able to do and not overdoing it. I am currently sitting here wondering why I am feeling so rough again and thinking that perhaps I have been overdoing it lately and that I need to slow down before I head into relapse territory.

It sounds as though you've been having a good time, which is one of the best medicines on the market!

Take care :)

In response to:Drained

2007-07-10T12:36:57+02:00

Reflexology does help. It helped my M.E. in that it helped to alleviate certain symptoms. Nothing is a complete cure, M.E. means you have to make a lifestyle change and often have to accept that you can no longer charge around at 100mph and be involved in everything that you've ever wanted but you must never give up, you mustfight it every day and you must not knock any cure no matter how daft until you have tried it!

Keep your chin up and keep smiling because one day you will feel better. I know, I've had M.E. for 11 years and I am better now than I have ever been.

It takes time and you will find things that help you along the way.

In response to:Drained

2007-06-13T04:40:36+02:00

What a rubbish situation. Hang in there!

In response to:Drained

2007-06-12T17:59:22+02:00

You are not going to be made well by having somebody squeeze your feet. Go and see a doctor.

In response to:Here I am

2007-04-24T21:33:36+02:00

I like your blog.

In response to:I'm so cool!

2007-03-23T15:58:29+01:00

Hé! well done! go on!

In response to:The days are getting longer

2007-03-21T23:31:08+01:00

true it cheers you up light nights... hope you are feeling ok today xx

In response to:The days are getting longer

2007-03-21T17:30:24+01:00

It certainly is a good thing. In fact, I'd go so far as to add a very or two. :)

In response to:Should I stay or should I go?

2007-03-19T23:22:10+01:00

Thanks for your comment. Frankly suburbia is my idea of a living hell, so I think I would find it really difficult to thrive there. I do need to find ways to avoid feeling isolated, though, and will try and think of ways to do this. I'll make sure wherever I moved to had a good rail service to London so friends could visit, and when I was feeling well enough I could escape to town if I felt like I needed it!

In response to:Should I stay or should I go?

2007-03-17T16:59:23+01:00

why don't you go for something inbetween something suburban where you don't feel isolated but it is cleaner living and you could feel happier??

In response to:I must be a cheap date

2007-03-13T18:38:35+01:00

hmmm teens on bikes a law onto themselves, shame we can't just whack them over the head like in ye olden days and say respect your elders you young whippersnappers! i don't think at 25 even i could get away with that though!!!

In response to:I must be a cheap date

2007-03-12T16:20:35+01:00

Because of my disability! I probably hadn't made it clear yet that my illness affects my walking, so thanks for pointing it out.

In response to:I must be a cheap date

2007-03-12T16:05:02+01:00

so why were you tottering?:))

In response to:Stuck to you like glue

2007-03-10T12:04:07+01:00

I often forget stuff, like when I have put something on, but mine is just me being dippy :))

I hope you enjoy your weekend, sounds like it could be good for you.

In response to:Talkin' 'bout the weather

2007-03-08T12:56:02+01:00

i saw snow drops today

i think im a reincarnated flower
i hide underground when its cold

x

In response to:Here I am

2007-03-05T11:37:13+01:00

Great that you are finding ways for your outlets. Keep it up!

In response to:Here I am

2007-03-05T11:32:48+01:00

Just looked it up on Google / Wikipedia. Fascinating. Look forward to reading your thoughts & comments and more importantly how you cope with your disability/illness.

All the best,
Moley